There are often multiple incidences of the same individual leading to issues around which patient record holds the correct and up to date information.
The results of the cancer screening tests are not reported in a consistent manner and this leads to inaccurate results that are difficult to audit.
Reporting delays between different levels
As the basic reporting administration is not in place records are lost and may not be transferred to the next level for treatment and action.
Misclassifications, missing data
As the systems are often manual in nature, information can often go missing or be classified incorrectly, leading to incorrect treatment pathways.
Inadequate and disjointed IT systems
Cancer registries can often be paper based in emerging markets. At best they could be utilising multiple outdated Excel spreadsheets without an ongoing alert system or identification of treatment patterns.
Long delays between data recording & availability
to health policy makers (EU)
The worldwide average between data recording and access for health policy makers is 21 months just in the European Union and significantly worse in emerging markets. This means that there is always a time lag in terms of data accuracy.
Cancer registries in sub-Saharan Africa
Paper-based recording, using at most an Excel spreadsheet to record cases and analyse trends